This week I interviewed Sheryl Chan Chronic Illness warrior and the voice behind the brand A Chronic Voice. She had a lot of great things to say about what she has gone through.
What do you suffer from?
Antiphospholipid Syndrome Lupus (SLE) Sjögren’s Syndrome Epilepsy PSVT (a heart rhythm disorder) A repaired mitral valve Clinical depression & anxiety.
When were you diagnosed?
2000 (14 years old)
What was it like when you were diagnosed?
Did you know a lot about your condition?
Not one bit.
What was your support system like? What is it like now?
My mum mostly. Doctor back then was awful and even mocked me for crying at my first diagnosis.
What is the hardest part about dealing with (issue)?
The unpredictability of pain.
What is a piece of advice you have for anyone who is just being diagnosed?
Always trust your instincts – you are in pain, don’t doubt yourself.
What is a piece of advice you have for someone who doesn’t understand or believe?
They wouldn’t listen to advice anyway so I’d try and direct them to some actually good movies or books.
What helps to keep you Forever Strong?
That as a human being I am always vulnerable, but as a human being I am also forever adaptable.